Grandparents Day

We are so blessed to have a sweet daughter who thinks of us as grandparents for her adorable sons...

Got the best surprise in the mail a card.. look at it.. it made me cry... I LOVE YOU PATRICE.. You are tbe best daughter in the world anyone could ever pray for..
Thanks for calling me MOM... I love you.. and my adorable grandsons...and of course BEN too.. (smile)

WHEW what a week...

Home health nurses are still coming daily at 8 am during the week and 10 am on weekends...

Started out Monday morning with nurse coming then took Bubba to school he had eye appointment after school so I picked him up at 3 and took him for exam. Needed new glasses.. (more money someone wanted.. LOL)

Then Tuesday Home health nurse arrived we had appointment with Surgeon in afternoon in Enid. So picked Bubba up from school and picked up Michael from work and off to Enid we went. The surgeon decided he did need to do a bit of surgery on the tumor/cyst once again to open it up. ( I think they are going to have to take him back into surgery again ) to have it all cut off and totally removed not just opened up. Nurse thinks so also she does not think this infection is going to clear up without complete removal of entire thing. Surgeon was leaving for vacation on Wednesday so he will see him again on the 14th I think it is. So will know more than.

Wednesday nurse came took she said I should keep him home today he was running a temp and was bleeding quite a bit. So he stayed home. We had afternoon appointment at the College for his Vocational Rehabilitation Program so we did make it to that.

Thursday nurse came and said he could try and go to school if he felt up to it. He wanted to try and go so he did. We had an after school appointment with his Psychologist.
However Thursday morning I had a bad morning. My fibro has been killing me lately but something else was going on had a backache that would not quit. It took me like 10 minutes to get off my bed everytime I would move it was like I was being stabbed in the back. I never cry with pain but I sure did Thursday morning I scared Mike and Bubba cause I never cry or complain with pain I deal with it. It took me like 10 minutes to finally get down all the stairs. I was HURTING. So even though I do not have insurance I called the Dr and told them she said come right in when I took Bubba to school. She gave me Steriod shot, Pain Shot and my B-12 injection I was overdo on. And sent me home with also a bunch of medication she said I have Sciatica and the nerve was being pinched or something. All I knew was I was hurting. I also have Degenertive Joint Disease and Osteoarthritis so these do not help either. Anyway I was able to motivate after the injections. Do not like the meds they make me feel like Gumby but I am taking them cause better than the pain.

Friday nurse came then took Bubba to school. Eye Dr called his glasses were in so had to take him there after school.

Saturday Nurse came at 10:00 Mike went up to nap about noon he had worked all night at Walmart from 10 pm to 7 am came home and mowed some of our acre of lawn. We have ALOT OF LAWNS at this house.. Bubba went up to nap so I just kicked back and rested some besides doing a bit of laundry.

Today is Sunday could not attend church this morning cause Nurse was coming between 10 and 11 am. She left a bit ago. So Bubba went up to play his game and rest. Mike is out working on yard some more then he is gonna take a wee nap he worked all night again at Walmart. Hopefully we can go to church tonight at 6 pm for evening services if Bubba is up to it.

Tomorrow is Labor Day Mike does not work and Bubba has no school. Nurse is coming at 9 am. We hope if Bubba is up to it for us to drive into Pratt, Kansas tomorrow so we can get out of town for a couple of hours. They have a huge Walmart Supercenter there and they have the auto section so I can get my oil changed. We do not have any of those things at our Walmart here. Silly too cause it is the only store basically we have in this tiny town you would think they would have all the special things in this store. BUT NOPE.. we are in the STICKS I tell ya.. (smile)

So that is our past week in a short version you can see all I did was run, run, run and take Bubba here and there. He is a full time job I tell ya. But I LOVE HIM to death.. My Gentle Giant who is like a Teddy Bear..

Hope you all had a better week than we did... Between Aaron's new glasses having to drive to Enid for his surgery and my Dr appointment and paying for my medications we had a very very expensive week.. Hope this week is better..

Whew I am pooped just writing about my week...

Sending you many hugs..

ALSO PLEASE keep Evelyn in your prayers she started a new round of Chemo and is making her very tired...

Love you

Glad this is a new week................

I pray this week is better than last week.

The In Home Health Nurse came each day again this past week to see Bubba and take his vitals and change his dressing etc. He did not feel good most of the week. Then on Friday when she came she was not happy with the way the cyst/tumor was looking at all she said it was going to have to be drained she feared and she called our PCP (Pamela) and she said to come right over. Pam took a culture of it and said we needed to put in a call to the surgeon. So they faxed papers over to Dr. Shreck his surgeon and I called and spoke to the nurse she said she was already gone for the day but that she would give him all the paperwork and info first thing on Monday she said however he is leaving to go out of town this week. (Oh joy) not what I really wanted to hear. So I guess tomorrow we shall see.

Today is Sunday it is 2:17 and the Nurse just left. She said his temp was down today so that is a good thing. She said his Blood Pressure was slightly elevated however.

Then on top of all of Bubba's health issues I have gotten myself a major UTI and my back is killing me..Hurts when I walk really bad. And my fibro has been giving me fits this week as well. I know stress and fibro do not mix. So I am praying this next week is a better week for us all.

I hope you all have a great week.. Love and Hugs

Hello friends

Well we got through the first week back to school for Michael and for Aaron. Aaron is a Senior wow. Mike will be working at the HS as a Paraprofessional in a couple of weeks right now working as a Para at the Middle School.

Aaron broke his cell phone yesterday at school he was so upset I felt so sorry for him.

The In Home Health Care Nurses are still coming daily before school to check his vitals and change his dressing on his infected area. They are AWESOME nurses ALL OF THEM. We are so lucky to have them help us out with this. Keep on praying for his healing and health.

My High School is having their 40th reunion in November in CA I SOOOOOOOOO want to attend.. Please say a prayer for this. I went to school from Grade school with many of these people so have known some of them for almost 50 years it would be so very very awesome to see them all. I just have to pray for a windfall. (smile) or for us or someone to win the lottery. If ya win the lottery any of you please let me know. (smile) Seriously it would be awesome to attend it is during Thanksgiving Weekend so I would actually get to also see THE YEARSLEYs for Thanksgiving so would be a double blessing. So just have to come up with money for the flight to rent a car for a few days and for the ticket for the reunion and hotel cost for the night of the reunion. I can find places to stay while there since it would be just me coming. But still this will be a lot of money. So say a prayer for me that this would work out. I could use a break... Mike really wants me to be able to go we attended his 40th Reunion right before we moved to Oklahoma. It was a lot of fun.

Well, I hope you all have a wonderful weekend. I have been feeling kind of yucky past few days.. And this heat is a booger it is 106 here today...

Hugs N Prayers to you ALL.........................

Update on Bubba

Okay was I still concerned on how Aaron was doing since his surgery back in February was not pleased at the progress of the healing of the area of the surgery etc. I called his primary Dr. she said to bring him right in to see her. She took one look and said good Lord, she called her nurse in who has worked with wound care patients before her name is Mandy. She said oh no we have to get something done for him this is awful. She did culture (biopsy) of the two areas the actual wounds and also the cyst/tumor like growth growing again on top. When we got home she called and said have Aaron in here before office opens at 8:30 am tomorrow I have someone who needs to see Aaron. So we went in. We saw Regina she is an RN who specilizes in Wound Care Home Health Care. She said yes, they needed to start caring for Aaron NOW...

They set it up for Regina and Wendy to come on Wednesday to our home. They took his vitals and history etc and dressed the infected area etc.. Putting something on to to create to skin growth as well.

Wendy has come everyday since and today another RN came as well to check on him with Wendy. Her name was Mary. All of these ladies are AWESOME so caring and gentle knowing that Aaron having to show his BUTT is not a favorite thing for a young man to have to do. But he is such a trooper and does not complain.

They also put him on a new med for pains as well. Wendy said normally they see patients Monday thru Friday but she said until he is feeling better she wants to see him Saturday and Sunday also. So it will be for 7 days for right now. Eventually will be Monday Wednesday and Friday visits. But it is so awesome they come into our home and do this all...

So we will just have to drive into Enid periodically to see the Surgeon for him to view the progress of the area. We have to go next Tuesday the day before school starts actually to see the Surgeon.

Please continue to keep Bubba in your prayers he has been through so very much this past year with everything. As if life has not been difficult enough over the years with his disabilities he gets thrown this into the mixture as well. He never complains and goes with the flow of what I say needs to be done. He is such a sweet kiddo I love him so so much..

Anyway just wanted to fill everyone in who reads this blog.. any personal questions on the issue just email at SgrBear25@aol.com I am not posting ALL that is happening with his treatments on this open forum for all to read so feel free to ask if you want to know more.

God Bless

Me and my boys

Patrice sent me this photo she took of me with my boys while in CA last month for the wedding.. This is Nathan and Cooper (I call them my grandsons) I love them to death... Gramma Juju misses you both something awful!!!!!!!!

Elijah's First Birthday

Sweet little Elijah.. the little one that Aaron adores here in town..
He just had his first BD.. he is such a doll. His Mom did the party in Elmo so we got him the cutest little Elmo outfit..

Happy Birthday

Today is Bill Yearsley's Birthday we love and miss you Bill out there in CA...

Bill is the man in charge of Bills Special Kids the Sports Group Aaron was in.. while in CA...

Aaron calls him Grampa... we are blessed to have him and the family in our lives.

This photo was taken last month while in CA at Penny's wedding..

Bubba and Grampa Bill

been a long 2 days

Home from the City.. thank the Lord for safe travels but need some continued prayers for Bubba... we also went to the hospital today to check on Don Canaan please continue to keep him and his entire family in prayer this is going to be a long road ahead of them with the amputation of his leg yesterday.(he is the father of a dear friend I met here in Alva after moving here..) Also went and saw Kim Lewis in the hospital she also needs your prayers as does her family. Thank you....

Hello

Hope everyone is having a great week thus far.. We are all okay here right now.. Aaron is getting anxious for school to begin I think. Anxious for his Senior year.. wow that sounds weird.. Senior and Aaron just don't go together LOL LOL

It was well over a 100 degrees here yesterday so I decided to try and make something pretty. My cousins son Ryan made it with Shrimp Salad in it I made it with Tuna Salad in it.. turned out pretty and very very yummy...

Here is what is looked like.. great for a summer dinner..

Never promised a tomorrow..

Just received one of those awful phone calls. The babies on my profile on facebook.. that I call my grandsons.. their grandpa died an hour or so ago with a massive heart attack. Please be with Patrice.. (the babies mommy) and her brother Michael and all the family he has left behind he was only 54 years old so quite scary indeed. God be with them all.... We are not promised a tomorrow tell those you love you love them.. NOW...

I laid my daddy to rest 11 years ago.. and I still love and miss him..

I love you Patrice and Michael and so know what you are going through..

Hugs N Prayers Judy

Church Buddies

Last Sunday we attended Redlands Church while in California.. I got this picture of Corey and Aaron together I rememembed I had one in all of church photos of years ago.. so here is Corey and Bubba Then and Now.... Taken almost exactly 10 years apart... Corey and Aaron grew up together they were born only a few days apart....

Back from California

Thank the Lord we had safe travels to California and back. I am so happy we got to attend Danny and Penny's wedding.. God is Good..

Here are some photos..

Hello All

Been a busy time lately... Our oven went out was out for 19 days and our Air Conditioner went out upstairs on a day it was over 100 degrees it was out for 12 days.. All was fixed yesterday WOO HOO...

The owners came this last weekend and said the painter is coming to paint the outside of the house first week in July. They also said they are selling the house and wanted to give us first crack at it since we have helped fix it up and worked on it some. But we cannot afford to buy a home at this time we have no down payment.

So looks like we will be looking for a place to move soon.

We are leaving for CA on Monday to go to Penny's wedding. (she is like my sister) I love her to death....

Going to try to fit in as many people as humanly possible in 5 days.. Gonna be hard but will do the best we can..

I have a major headache today hoping it passes soon..

Hope you are all having a great day.. Hugs

My new cupcake pan I love it..

Ordered this new pan it puts holes in the cupcakes as it bakes them so you can put filling inside.. Here is what they looked liked going in the oven.. coming out of the oven with the filling inside and all done.. Love this new pan. I made the kind of filling that goes into twinkies with marshmellow...

And it all continues

People REALLY need to mind their own business. I posted something yesterday about Stepmothers day or Step Monsters Day whichever the case may be.. Well someone from our church in CA jumped all over me. Luckily my friends jumped right in to defend my postings.. knowing I was teasing and making a joke. HELLO anyone who knows me knows I tease a lot... !!!!! Anyway this chick deleted me and Aaron today what a hoot.. What is happeniing out there in CA anyway...??? This is insane...

Well once again Bubba is hurt by uncaring people..

Okay time for me to vent before I scream.. I am so livid right now ... and probably a good thing I am not in California right now too.. I would hate to have to run into this person who has hurt my son.

You know I just never will understand how some people can call themselves or claim to be a Christian and hurt a child any child but a Special Needs child who already feels so many does not love him how can they live with themselves for doing such mean and cruel and hurtful things? Aaron has tried to commit suicide several times because of thinking people does not love and care for him and this person know this!

A few months back Aaron's sister deleted him from facebook it broke his heart he was devastated for days. He adored his older sister. But she was told the facebook account was not Aaron's it was mine. Well that is a LIE it is Aaron's facebook account and always has been. He is the one who signed up for it and maintains it. And ANYONE he knows Bubba knows he is capable of having his own account. He is in his second year of Computer Classes at School a mainstream 11th grade class and getting an A in it. So there!!!!! He is not stupid and he can do many things on his own especially where computers are concerned. If people cared and loved him enough to really know him they would know this about him. After his sister deleted him so did many of her friends. He took it quite personally. Aaron has his own Apple Imac computer in his room and all of his game units can also access the web wirelessly so he is on the computer alot and knows how to use it all. (Better than his old mama I might add) he has taught me a few things. Ha!

Well today he went to send his Auntie in CA a picture of him with his two Gold Medals on facebook that he won at the Special Olympics this week and found out she had deleted him. (she is not a real Aunt just someone from church he called Aunt) I looked and she did me as well. I said well son she probably deleted the account and is no longer on facebook. But he went and checked some of their mutual friends and came back and said nope she is still on facebook she has just deleted me from her facebook.

I said what the heck for?????? He said well you know a few weeks ago she posted on facebook she had dinner with Amanda, Christopher, Haley, Ian and Sara before Amanda left for Japan. He said they turned her against me too. He was bawling his eyes out. People can be so so so cruel. They have no ideas what runs through a special needs child mind nor I might add do they really even care for that matter.

I am so upset that once again he has been hurt by such childish behaviours. It is so uncalled for. I mean if she wants to delete me it is no big deal. Go ahead and delete me (which she did) if only we could delete people from our lives as easily as people tend to do on facebook etc.

I think Bubba needs to share some of his medications with some of these people if you ask me. For I am beginning to feel maybe they need the medication even more than he does.

He has more love in his pinky finger than they have in their whole bodies. All he wishes is for people to love and accept him for who he is despite his disabilities and shortcomings. Is that to much to ask for.

What makes this even sadder is it is a church member if it were someone out in the world I could tell him we could pray for their salvation and that God would give them a loving and caring heart. But hard to try and explain such behaviors for someone in their middle 40's and who should know better. All I can say is I am so glad Bubba has such a big heart and he himself would never hurt and treat someone the way he is being treated. And he is the one who is called not of the "NORM" umn... I am seriously beginning to wonder on this one for sure.

Anyway thank you for the rantings Michael is upstairs asleep and I just had to vent to get this out....

Say a prayer for Bubba that he might see that he does not need people such as her in his life. And that she will pay someday for hurting him the way she has.

We are back home from the State Special Olympics

We just spent the last 3 days in Stillwater for the State Special Olympics. Aaron competed in the Softball Throw and the Shot Put throw.. He WON GOLD in both events.. WOO HOO for Bubba.. he did awesome.. We were so proud.. All of our kids from Alva did quite well and many of them brought back some Gold Ribbons actually..

I will post some of the pictures I took..













After I posted the pictures at the hotel last night our friend in California made this for Bubba isn't it awesome...??? Thanks Desi

Gotta love Oklahoma

Okay so we gave up Earthquakes in CA for Tornados in OK...

Yesterday was a bad day here in Oklahoma. There were about 30 tornados throughout the state. One minute it was sunny here, then it would get dark and start raining or hailing.

In Norman, Oklahoma they were were hit hard. It is awful and some lives were lost as of last night 5 were dead have not heard this morning yet the total loss. But it sure looked awful.

This morning so far here the sun is shining but that does not mean anything cause that could change within minutes around here. I have never seen weather change so quickly in a place seriously.

We are just now beginning tornado season. Oh joy.. (NOT!!!!) LOL

Here are some photos of what some of the damage done from yesterdays tornado.
In one of the photos below check out the size of the hail.. some were as big as softballs...